Macrodystrophia Lipomatosa from shoulders to her fingers on
both arms.
'The cause of the disease is unknown and is therefore incurable
'The cause of the disease is unknown and is therefore incurable
For over 50 years,
Duangjay Samaksamam, from Thailand, has suffered from an extremely rare and
painful affliction that leaves her limbs permanently swollen.
Experts believe the 59-year-old is the
only person in the world to suffer the rare condition macrodystrophia lipomastosa
from shoulder to fingers on both arms.Embarrassed by her condition throughout
her childhood, she spent the first 20 years of her life as a recluse ashamed of
the way she looked, meaning she never went to school.
But she was forced to come out of hiding
at the age of 20 to earn a living in order to care for her elderly parents, and
take over running the family grocery shop.She said..
My hands are so heavy I can barely lift them to comb or shampoo my hair, it's very difficult. Getting dressed is also very difficult and painful. 'Some doctors said the only solution was to cut off my hands if I wished to walk around freely. But I don't want to do that.'They removed about 700 grams of fat and blood out of my hands but after a month it just grew back"
1 comment:
It always good to thank God,imagine what she is going through
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